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Intellectual & Developmental Disabilities

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The goal of DRMA is to ensure access to Medicaid/CHIP assistance for survivors of major disasters and public health emergencies who have to evacuate across state lines.

Along Senator Casey (PA) Co-Sponsors in the Senate are: Blumenthal (CT), Welch (VT), Van Hollen (MD), Gillibrand (NY), Warren (MA), Brown (OH), Sanders (VT), Fetterman (PA), Schatz (HI), and Duckworth (IL).

Along Congressman Panetta (CA) and Takano (CA), Co-Sponsors in the House are: Tokuda (HI), Crockett (TX), Blunt Rochester (DE), Holmes Norton (DC), Soto (FL), and Moore (WI).

Read the one-pager on DRMA here.

You can join the hundreds of organizational and individual endorsers.

More than 90 million people nationwide benefit from Medicaid and CHIP, and they’re at risk of losing it when the next disaster strikes! Contact your representatives and ask them to support the Disaster Relief Medicaid Act.

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This year at RCPA’s Annual Conference A Decade of Unity, which was held in Hershey, PA, we were fortunate enough to have John Broderick, Jr. speak on mental health. His presentation and message are inspirational, and he continued to share his message on TEDx Talk. We encourage you to listen to his words on childhood mental health. You can view the speech here.

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The Centers for Medicare and Medicaid Services (CMS) recently released two reports focused on Long-Term Services and Supports (LTSS). The reports are the Medicaid Long-Term Services and Supports Annual Expenditures Report, Federal Fiscal Year 2020, and the Medicaid Section 1915 (c) Waiver Programs Annual Expenditures and Beneficiaries Report.

These reports provide information on the LTSS rebalancing trends and patterns in expenditures for different home and community-based services (HCBS) and institutional care, both nationally and across states.

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From June through August 2023, the Office of Long-Term Living (OLTL) held Listen and Learn Sessions across Pennsylvania. There were a total of sixteen in-person sessions and three virtual sessions where Community HealthChoices (CHC), OBRA, Act 150, and Living Independence for the Elderly (LIFE) participants, family members, and community members were able to offer input on how OLTL could improve its programs.

A summary of the input provided is now available and can be viewed here.

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News from ANCOR:

Dear ANCOR members,

I write to call your attention to a segment that aired during Saturday’s episode of Good Morning America on the direct support workforce crisis. The story chronicling staffing shortages in group homes on Long Island and nationally included excerpts from an interview with ANCOR COO Gabrielle Sedor, as well as reference to ANCOR’s research on the State of America’s Direct Support Workforce Crisis. Overall, the show did an excellent job of packaging complex issues into an accessible, three-minute story.

View and share Good Morning America’s feature on the direct support workforce crisis.

GMA is the latest among several high-profile outlets showcasing the direct support workforce crisis, illustrating growing acknowledgment of the significance of our field’s recruitment and retention obstacles. To that end, I hope you will consider sharing the link to the video on social media and in your advocacy so we can help further amplify this important message.

Finally, this high-profile feature simply would not have happened without the contributions of Michael Seereiter, President & CEO of the New York Alliance for Inclusion & Innovation (who was also interviewed for the segment) who connected us with the producer, and Lauren Tilghman, Director of Strategic Communications for KenCrest who provided some of the photos that were used in the segment. Thank you, Michael and Lauren!

With gratitude,

Sean Luechtefeld, PhD, CAE (he/him)
Vice President, Membership & Communications
ANCOR

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