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Intellectual & Developmental Disabilities

FROM ANCOR:

Thanks to your advocacy, today the Congressional committee leaders who have the power to oversee the Department of Health and Human Services (HHS) sent Secretary Azar a letter expressing concern that Medicaid intellectual and developmental disabilities (I/DD) supports have not yet received emergency COVID-19 funding. Additionally, last week 37 members of Congress sent HHS a letter asking it to include I/DD supports in its emergency funding distributions.

Please ask your individual members of Congress to keep the momentum going and maintain pressure on HHS to stop overlooking Medicaid disability supports, the #ForgottenFaces of this pandemic.

The Ask Please take two minutes today to Contact Congress to demand that federal relief dollars reach Medicaid-funded providers of long-term supports and services to constituents with intellectual and developmental disabilities (I/DD).

Over 80 days into the pandemic, the federal government has not designated a single dollar of emergency relief specifically for Medicaid-funded disability providers.

The Details The U.S. Department of Health & Human Services (HHS) is responsible for distributing funding from the Emergency Fund, which was initially created by the CARES Act. To date, HHS has distributed or committed about $90 billion of the $175 billion appropriated so far, but the vast majority of those dollars have gone to Medicare providers. Meanwhile, not a single penny from the Fund has been committed to Medicaid-funded I/DD providers, and by consequence the people they support and their staff of Direct Support Professionals are left without essential resources. While the House passed the HEROES Act, which contains provisions for Medicaid disability supports funding, we still need emergency funding from HHS in the interim as it could be as late as July before the Senate even considers the HEROES Act for a vote.

But even if the Senate preserves all of the HEROES Act’s provisions (and we’re taking steps to ensure it does), it could still be late fall by the time that funding reaches providers, who needed the relief when this crisis began in early March. Therefore, any new funding streams created by the bill, if it passes, might not take effect until October or even later.

Medicaid-funded I/DD supports cannot wait that long for relief, especially given that cash reserves are low and federal loan dollars are running out. Many providers are already confronting difficult staffing and program decisions—if not closing outright. Given this tenuous situation, Congress, which has oversight responsibilities over HHS, must take steps NOW to ensure disability services are funded by the Public Health & Social Services Emergency Fund.

The allocation of these funds, already appropriated by Congress, will enable providers to:

  1. Stabilize supports so they can be maintained during the crisis.
  2. Preserve essential community supports currently suspended due to social isolation so they can reopen after the crisis has subsided.
  3. Supercharge staff stabilization activities, including hazard pay and efforts to recruit and retain direct support professionals.

We know the situation is frustrating, but the relative bright spot is that your advocacy is working. In addition to the two letters mentioned above, with your support ANCOR led a bipartisan group of seven U.S. Senators to write a letter to HHS demanding that emergency relief go to Medicaid-funded I/DD providers.

Please continue to speak up to show Congress that it must keep the pressure on HHS to do right by Medicaid disability services and the people they support. People with I/DD and the Medicaid providers on which they rely have been the pandemic’s #ForgottenFaces, and people are dying as a result.

Federal action is critical for the life and well-being of people with disabilities and the staff who support them. Thank you for taking action today to ensure the #ForgottenFaces are forgotten no more.

The Centers for Disease Control and Prevention (CDC) announced an award of $140 million in additional funding to help prepare for this year’s flu season, which could also come at the same time as a second wave of COVID-19 infections. This additional funding (see the funding chart) is provided by the Coronavirus Aid, Relief, and Economic Security (CARES) Act and is to be used towards staffing, as well as increasing awareness of the flu vaccine. Additionally, the funding aims to expand access for those who do not have health insurance and those who are at a higher risk of having complications from the flu and are part of the high-risk population.

ODP Announcement 20-066 provides guidance on establishing visitation policies in residential settings when a county transitions to the Green Phase of Governor Wolf’s Process to Reopen Pennsylvania. Residential settings include licensed and unlicensed community homes (55 Pa. Code Chapter 6400) and licensed and unlicensed family living homes (55 Pa. Code Chapter 6500).

Per the Governor’s Process to Reopen Pennsylvania, homes located in counties in the “Green Phase” may lift visitation restrictions in certain congregate care settings using the guidance provided in this document. ODP recognizes that many families and persons designated by individuals who live in residential settings are eager to resume in-person visits with their friends and loved ones and fully encourages all providers in counties in the Green Phase to resume in person visits as soon as possible.

However, ODP also acknowledges that providers must remain diligent in their efforts to contain the spread of the COVID-19 virus, especially in residential settings that support individuals at higher risk for contracting the virus.

Residential providers should establish or update a written “Visitation Policy” for in person visits. This policy should be shared with all individuals and persons designated by the individual. The announcement outlines the requirements for these policies.

The provider must offer assistance to the individual to communicate with friends and family, when needed. The provider should be creative in ways that assist the individual to remain in contact with family and friends and feel comfortable with the method of communication.

Residential providers also have a responsibility to identify any skills the individuals need to acquire or practice to participate in desired in-person visits and assist individuals in learning skills. This includes learning how to practice social distancing, wear masks, and hand washing protocols. The following websites have helpful resources to assist with these activities:

Please contact the ODP Regional Office with any questions about this announcement.

ODP Announcement 20-065 provides updated guidance regarding reporting cases of COVID-19 for individuals registered or enrolled, and staff, to the Office of Developmental Programs This guidance is supplemental to ODP Announcement 20-049 UPDATE issued on 4/30/2020 and provides clarification as testing standards and best-practices continue to evolve.

This guidance applies to:

  • All Qualified Providers
  • Supports Coordination Organizations (SCOs) providing services through the Consolidated, Person/Family Directed Support and Community Living (ID/A) Waivers and the Adult Autism Waiver (AAW)
  • Administrative Entities (AEs)
  • Adult Community Autism Program (ACAP)
  • Private Intermediate Care Facilities for Individuals with Intellectual Disabilities (ICF/IDs)

Any time an individual or staff is tested for COVID-19 and receives a positive test result; individual testing must be reported. This reporting is required, regardless of the reason for the test. Reporting should continue for individuals or staff who are suspected to have COVID-19 due to the presence of symptoms and are tested.

Reporting for individuals and staff is not required when testing occurs, and the results are negative as a result of the following:

  • Agency/facility universal testing
  • Repeat testing done on an individual who has already tested positive, such as testing done for return to work or for discontinuation of transmission-based precautions
  • Testing of an asymptomatic* individual or staff due to an exposure or potential exposure to a person who tested COVID-19 positive
  • Routine practice or screening prior to receiving a medical procedure or care that is not the result of displaying COVID-19 symptoms
  • Other testing when the person is asymptomatic

For additional guidance regarding the reporting of COVID-19 testing, please review ODP Announcement 20-049 (Update) issued on 4/30/2020.