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ACL

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The Long-Term Services and Supports (LTSS) Subcommittee meeting was recently held on May 7, 2025. During the meeting, a number of presentations were given. In addition to the presentations, the agenda and a document that provided follow-up items from the LTSS Subcommittee meeting on April 2, 2025, were provided.

Members should take time to review the PowerPoint presentations from the meeting below:

The next LTSS Subcommittee meeting is scheduled for June 4, 2025. The meeting will be held from 10:00 am – 1:00 pm in the Forest Room at the Commonwealth Keystone Building, which is located at 400 North Street in Harrisburg, PA. The option to participate virtually is also available.

If attending virtually, please register here. The option to call in is also available by dialing (415) 655-0052, access code 886-801-808#.

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RCPA received notification today from the Brain Injury Association of America (BIAA) and the National Association of State Head Injury Administrators (NASHIA) that the Traumatic Brain Injury (TBI) Act was included in Congress’s proposed year-end package. Key provisions included in this bill include:

Administration for Community Living (ACL)

  • Reauthorizes the State Partnership Program and Protection & Advocacy Program.
  • Allows grants to be used to support systems of care for people of any type of acquired brain injury.
  • Allows a state to request a waiver of the match requirement if they cannot meet the match to carry out the grant purposes. The match decrease can only be for that fiscal year, and states must maintain at least the match that they have had during the previous fiscal year.
  • Requires ACL in awarding State Partnership Program grants to take into consideration populations that may be at higher risk for brain injury.

Centers for Disease Control and Prevention (CDC)

  • Reauthorizes the CDC’s TBI Programs, including the National Concussion Surveillance System.
  • Renames the TBI Program to honor Congressman Bill Pascrell.
  • Requires an examination of brain injury as a chronic condition that may impact someone across the lifespan. CDC plans to accomplish this through work with the National Academies of Science, Engineering, and Medicine.
  • Requires CDC to review those who may have higher impact of brain injury, including due to their occupation and from interpersonal violence.

RCPA encourages providers, staff, and families to reach out to their members of Congress through email or phone call by COB Thursday, December 19, 2024. The message can be simple. For example:

As a constituent, I encourage you to support the year-end continuing resolution, which includes the TBI Act. The TBI Act is pivotal to create systems of care for people of brain injury. [Feel free to share any personal impact] Thank you for your support of this important bill.

In Pennsylvania, our current state Senators are:
Casey, Robert P., Jr. and
Fetterman, John

Additional information for contacting your Senators can be found here.

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Photo by Chris Montgomery on Unsplash

The President’s Committee for People with Intellectual Disabilities (PCPID) will be hosting its next meeting on Thursday, September 26, 2024, from 9:00 am – 4:00 p.m. ET, and Friday, September 27, 2024, from 9:00 am – 3:00 pm ET. Register for the meeting here.

The meeting is open to the public and will be hosted at the U.S. Department of Health and Human Services. The meeting will take place in the Switzer Building Conference Room 1400, located at 330 C Street, SW, Washington, DC 20201. Members of the public can observe the meeting in person or virtually. To observe the meeting in person, seating will be available for the first 25 individuals to reserve seats due to space limitations. In order to observe the proceedings in person or virtually, you must register in advance.

The Committee will discuss the 2024 PCPID Report focused on home and community-based services (HCBS) as it relates to direct support professionals, employment, community living, and federal support programs. The Committee will also discuss emerging issues facing people with intellectual disabilities.

Comments and suggestions, especially from people with intellectual disabilities, are welcomed. If there are comments that you would like to inform the PCPID, please share them using ACL’s comment form. Comments received by Friday, September 13, 2024, will be shared with the PCPID at the meeting.

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The resources for the Administration for Community Living’s (ACL) Traumatic Brain Injury (TBI) Technical Assistance and Resource Center’s (TARC) June 2024 webinar Cognitive Impairment in Substance Use Disorder Treatment: Neurologic Informed Care are now available and posted on the ACL website. The resources posted include the webinar recording (captioned and available on YouTube) and webinar slides.

During the webinar, John D. Corrigan, PhD, ABPP, introduced the new American Society of Addiction Medicine (ASAM) expectations for the treatment of persons with cognitive impairment, including “Neurologic Informed Care,” as described in the new criteria. Implications for the identification of people in treatment who have a history of brain injury, as well as the use of accommodations to make treatment more accessible, were discussed.

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Overview of HHS’ Final Rule Implementing Section 504 of the Rehab Act
Tuesday, May 28, 2024
2:00 pm ET
Register Here

On May 1, 2024, the US Department of Health and Human Services (HHS) made disability rights history with the release of a long-awaited final rule implementing Section 504 of the Rehabilitation Act of 1973. This comprehensive update — the first since the initial regulation was put into place more than 40 years ago — creates one of the most powerful tools we have ever had to combat discrimination based on disability in health care and human services.

In this webinar, leaders from the HHS Office for Civil Rights (OCR) will provide an overview of the rule’s critical provisions for the disability and aging networks. ASL and CART will be provided. A recording will be available on ACL’s website shortly after the webinar.

ACL was proud to work with their partners in the OCR and the disability community to achieve this top priority, and they are looking forward to working with OCR, the disability and aging networks, and the broader community to ensure that people with disabilities know about the rule’s powerful provisions to uphold their civil rights and guarantee they have equal access to health care and human services.

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